What are the preferences of patients attending a memory clinic for disclosure of Alzheimer's disease? Mahieux F, et al, Rev Neurol (Paris) 2018.
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Résumé et points clés
BACKGROUND/
Aims: This report shares and discusses the collected personal preferences of patients attending a memory clinic for disclosure of a potential Alzheimer's disease (AD) diagnosis.
Methods: In this prospective study of outpatients attending a single memory clinic over a 6-year period (March 2004-October 2010), doctors collected their patients' wishes (willingness to be informed, motivation, presence of the family) through a standardized procedure.
Results: Of the 1005 patients questioned throughout the study period-with a final diagnosis of dementia for 480 of them-858 (85.3%) wished to be informed of an AD diagnosis, whereas 72 (7.2%) did not and 75 (7.5%) were not sure. Older age and reduced cognitive functioning were independently associated with a preference to not be informed of a potential AD diagnosis.
Conclusion: Our study provides evidence of the willingness of most patients to know the truth vis-à-vis AD and also offers some insight into their motivations.
Références de l'article
- What are the preferences of patients attending a memory clinic for disclosure of Alzheimer's disease?
- What are the preferences of patients attending a memory clinic for disclosure of Alzheimer's disease?
- Mahieux F, Herr M, Ankri J
- Revue neurologique
- 2018
- Rev Neurol (Paris). 2018 Sep-Oct;174(7-8):564-570. doi: 10.1016/j.neurol.2017.10.016. Epub 2018 Apr 24.
- Adult, Age Factors, Aged, Aged, 80 and over, Alzheimer Disease/*diagnosis/psychology, Ambulatory Care Facilities, Cognition Disorders/psychology, Disclosure, Female, Humans, Male, Memory Disorders/*diagnosis, Middle Aged, *Patient Preference, Prospective Studies, Surveys and Questionnaires, Truth Disclosure
- Syndromes_Geriatriques, Annonce
- Liens
- Traduction automatique en Français sur Google Translate
- DOI: 10.1016/j.neurol.2017.10.016
- PMID: 29699774
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